SEIQoLの関連資料および関連リンク

緩和ケアは看取りの医療ではないー最期まで続くQOLの向上、生きる挑戦, (月刊公明 2007年7月号 p34-p41)
注目される個人の生活の質評価法 SEIQoL-DW, (p42-p44)
主任研究者のインフォームドコンセントの2類型、緩和ケアモデルについて発表ファイル
QOL評価、緩和ケア、SEIQoLの理解に役立つ内容です。厚生労働省難治性疾患克服研究事業「特定疾患患者の生活の質(QOL)の向上に関する研究」班の主任研究者として、与党の理論誌である月刊公明の編集部からインタビューの申し込みを受け、厚生労働省の研究班の科学的な研究成果の一般的な紹介として行いました。全文がPDFとして読めます。
QoLについて深く考えていくためによんでください。
論文のリストにAbstractや全文データベースへのリンクがされていますので、参考にしてください。
1.         Hickey A, Barker M, McGee HM, O’Boyle C. Measuring health-related quality of life in older patient populations: a review of current approaches. PharmacoEconomics, 2005; 23(10):971-993.
2.         Höfer S, McGee HM, Ring L, O`Boyle C, Hickey A. Judging quality of life: the influence of cognitive processes. Quality of Life Research (under review) (submitted 1/05; feedback/revision 3/05; accepted for publication 7/05).
3.         Ring L, Hoefer S, Heuston F, Harris D, O’Boyle CA.  Response shift masks the treatment impact on patient reported outcomes (PROs): the example of individual quality of life in edentulous patients.  Health & Quality of Life Outcomes 2005, 3:55. September 2005.
4.         Rees J, Clarke MG, Waldron D, O’Boyle C, Ewings P, MacDonagh R. The measurement of response shift in patients with advanced prostate cancer and their partners. Health and Quality of Life Outcomes, 2005;3:21-29.
5.         Rees J, MacDonagh R, Waldron D, O’Boyle C. Measuring quality of life in patients with advanced cancer. European Journal of Pailliative Care, 2004;11(3).
6.         O’Boyle, C, Höfer, S, Ring, L. Individualised Quality of Life in Clinical Trials. In Quality of Life Assessment in Clinical Trials, 2nd Edition, Fayers, P. Hays, R. 2004. (in press).
7.         Joyce CRB, Hickey A, McGee HM, O'Boyle CA.  A theory-based method for the evaluation of individual quality of life: the SEIQoL. Quality of Life Research 2003; 12:275-280.
8.         Tiernan E, Casey P, O’Boyle CA, Birkbeck G, Mangan M, O’Siorain L, Kearney M. Relations between desire for early death, depressive symptoms and antidepressant prescribing in terminally ill patients with cancer. Journal of the Royal Society of Medicine 2002 Aug; 95; (8):386-90
9.         Coen RF, O’Boyle CA, Coakley D, Lawlor BA Individual quality of life factors distinguishing low-burden and high-burden caregivers of dementia patients. Dementia and Geriatric Cognitive Disorders 2002; 13(3):164-70
10.      Clarke S, Hickey A, O’Boyle C, Hardiman O. Assessing individual quality of life in amyotrophic lateral sclerosis. Quality of Life Research 2001;10:149-158
11.      O’Boyle, CA. (2001). The concept of quality of life.  In N. J. Smelser & P.B. Baltes (Eds.), Pages 12628-12631 The international encyclopedia of the social and behavioral sciences. Oxford, England: Elsevier.
12.      Clarke S, Hickey A, O'Boyle CA, Hardiman O. Assessing Individual Quality of life in amyotrophic lateral sclerosis. Quality of Life Research 2001;10:149-158.
13.      Rees J, O’Boyle CA, MacDonagh R. Quality of life: impact of chronic illness on the partner. Journal of the Royal Society of Medicine 2001; 94:563-6.
14.      O’Boyle CA, McGee HM, Browne JP. Measuring response shift using the schedule for evaluation of individual quality of life. IN Schwartz CE & Sprangers MAG (eds). Adaptation to Changing Health. Response Shift in Quality-of-Life Research. WashingtonDC: American Psychological Association, 2000, pp123-36.
15.      Joyce CRB, O'Boyle CA, McGee HM (eds). Individual quality of life. Approaches to conceptualization and measurement in health. Reading: Harwood Academic, 1999.
16.      Coen RF, O’Boyle CA, Swanwick GRJ & Coakley D. Measuring the impact on relatives of caring for people with Alzheimer’s disease: quality of life, burden and well-being. Psychology & Health, 1999;14: 253-61.
17.      Waldron D, O’Boyle CA, Kearney M, Moriarty M & Carney D. Quality of life measurement in advanced cancer: assessing the individual. Journal of Clinical Oncology 1999; 17,11:3603-11.
18.      Browne JP, O'Boyle CA, McGee HM, McDonald NJ and Joyce CRB. Development of a direct weighting procedure for quality of life domains. Quality of Life Research 1997; 6, 301-9.
19.      Browne JP, McGee HM, O'Boyle CA. Conceptual approaches to the assessment of quality of life. Psychology & Health 1997; 12:737-51.
20.      Hickey AM, O'Boyle CA, McGee HM, McDonald NJ. The relationship between post-trauma problem reporting and carer quality of life after severe head injury. Psychology & Health, 1997; 12:827-38.
21.      O'Boyle CA, Waldron D. Quality of life issues in palliative medicine. Journal of Neurology 1997, 244 (suppl 4), S18-S25.
22.      O'Boyle CA. Measuring the quality of later life. Phil. Trans. R. Soc, Lond. B. 1997; 352:1871-89.
23.      O'Boyle CA. Quality of Life assessment: A paradigm shift in healthcare? Irish Journal of Psychology, 1997; 18:1, 51-66.
24.      Hickey AM, Bury G, O'Boyle CA, Bradley F, O'Reilly F, Shannon W. A new short form individual quality of life measure (SEIQoL-DW): applications in a cohort of individuals with HIV/AIDS. British Medical Journal, 1996;313:29-33.
25.      O'Boyle CA. Quality of life in palliative care. In G. Ford and I. Lewin (eds.). Managing Terminal Illness. RCP Publications, London 1996, pp. 37-47.
26.      O'Boyle CA. The Schedule for the Evaluation of Individual Quality of Life (SEIQoL). International Journal of Mental Health 1994, 23, 3-23.
27.      Coen R, O'Mahony D, O'Boyle CA, Coakley D, Joyce CRB, Hiltbrunner B and Walsh JB. Measuring the quality of life of dementia patients using the Schedule for the Evaluation of Individualised Quality of Life. Irish Journal of Psychology 1993; 14:154-163.
28.      O'Boyle C, McGee HM, Hickey A, Joyce CRB, Browne J, O'Malley K and Hiltbrunner B. The Schedule for the Evaluation of Individual Quality of Life (SEIQoL): Administration Manual. Dublin: Department of Psychology, Royal College of Surgeons in Ireland, 1993.
29.      O'Boyle C, McGee H, Hickey A, O'Malley K and Joyce CRB. Individual quality of life in patients undergoing hip-replacement. Lancet 1992; 339:1088-1091.

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